tag:blogger.com,1999:blog-1345573145957924958.post5873334219956507643..comments2024-03-13T09:08:55.969-07:00Comments on Slightly Alive: Why won't CDC study MY disease?Mary Schweitzerhttp://www.blogger.com/profile/11583106682242141031noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-1345573145957924958.post-83758475671626963852021-08-19T15:26:57.504-07:002021-08-19T15:26:57.504-07:00I was diagnosed as HEPATITIS B carrier in 2013 wit...I was diagnosed as HEPATITIS B carrier in 2013 with fibrosis of the<br />liver already present. I started on antiviral medications which<br />reduced the viral load initially. After a couple of years the virus<br />became resistant. I started on HEPATITIS B Herbal treatment from<br />ULTIMATE LIFE CLINIC (www.ultimatelifeclinic.com) in March, 2020. Their<br />treatment totally reversed the virus. I did another blood test after<br />the 6 months long treatment and tested negative to the virus. Amazing<br />treatment! This treatment is a breakthrough for all HBV carriers.MATINAhttps://www.blogger.com/profile/11827922186910353142noreply@blogger.comtag:blogger.com,1999:blog-1345573145957924958.post-86131761192773288832012-05-27T13:31:50.030-07:002012-05-27T13:31:50.030-07:00Did you get a response?
A written record of what ...Did you get a response?<br /><br />A written record of what you told them is evidence.Samuel Waleshttps://www.blogger.com/profile/11141951571229527898noreply@blogger.comtag:blogger.com,1999:blog-1345573145957924958.post-41317581518689581632012-03-18T09:49:25.844-07:002012-03-18T09:49:25.844-07:00Thank you Mary. Reading this, even though I am un...Thank you Mary. Reading this, even though I am unable to leave my home from severe disability, it makes me feel hopeful to read this testimony given knowing there are those fighting the fight I am too ill to do myself. After the death of my husband left me to cope alone with this severe disability in 03 I had no idea the true nightmare my life would become. It is TERRIFYING!!!<br /><br />((hugs)) to all who are ill with CFIDS and are then severely harmed by the treatment we receive in our efforts to survive and live.<br />PatriciaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-1345573145957924958.post-12404330611843894982012-01-18T11:24:12.978-08:002012-01-18T11:24:12.978-08:00New Jersey has a very good patient advocacy group....New Jersey has a very good patient advocacy group. You should get in touch with them - I am sure they must have a list of good doctors. Their website is here:<br /> http://www.njcfsa.org/Mary Schweitzerhttps://www.blogger.com/profile/11583106682242141031noreply@blogger.comtag:blogger.com,1999:blog-1345573145957924958.post-72472390963732849302012-01-18T05:30:06.916-08:002012-01-18T05:30:06.916-08:00Mary you had done good job for the people as well ...Mary you had done good job for the people as well as for you. I am also suffering from this disease and finding a good doctor for treatment. If you know any good doctor in NJ then let me know. <br />----------------------------------------<br />- <a href="http://fatiguecare.com" rel="nofollow"><b>Chronic Fatigue Symptoms</b></a>Fatigue carehttps://www.blogger.com/profile/01579214513337913618noreply@blogger.comtag:blogger.com,1999:blog-1345573145957924958.post-68391578577003620962012-01-17T04:38:07.301-08:002012-01-17T04:38:07.301-08:00Thanks, Mary. I am an argentine and was diagnosed ...Thanks, Mary. I am an argentine and was diagnosed CFS / ME in 1998, at 46, without being explained what it wasand lost my job. Since then, I've practically have had no treatment (in public hospitals not much is known about it) and am completely on my own making ends meet on a psychiatric pension. The expression you use, "slightly alive", is a perfect description of my condition. Thanks for all your hard work and all the best.alice in wonderlandhttps://www.blogger.com/profile/17077878041269673014noreply@blogger.comtag:blogger.com,1999:blog-1345573145957924958.post-43114123030879866032011-12-23T10:11:38.830-08:002011-12-23T10:11:38.830-08:00Thanks Mary for putting all this together and test...Thanks Mary for putting all this together and testifying. I have posted links on Twitter, Facebook, Google+ and some mailing links, highlighting this bit in particular:<br /><br />"Imagine my dismay to learn that my own Delaware Blue Cross/Blue Shield, which has been paying my doctor bills for over three decades, will not pay for my treatment for “CFS” at Dr. Enlander’s unless he first sends me to get ten weeks of Cognitive Behavior Therapy!"TKno2https://www.blogger.com/profile/12390568027330222100noreply@blogger.comtag:blogger.com,1999:blog-1345573145957924958.post-28073402196695364002011-12-22T17:48:04.519-08:002011-12-22T17:48:04.519-08:00Bravo! You have such knowledge, such poise, such ...Bravo! You have such knowledge, such poise, such patience, and such collectedness. I remain so infuriated by their b/s I am certain that I would not be able to maintain my composure, as you do! I guess that's why I stick with my letter writing campaign. Keep up the great work! Your efforts make me smile.HIV-NEGATIVE AIDS!https://www.blogger.com/profile/15575434615733717005noreply@blogger.com